Understanding Rare Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique in these times of uncertainty will help us to continue to provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder.  Just ask us on info@rarechromo.org Please note that we do not cover mitochondrial, metabolic or autosomal recessive single gene disorders.

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 139 results. Page 1 of 1

Country County No. of Members
England -none- 37
England Avon 121
England Bath & NE Somerset 12
England Bedfordshire 136
England Berkshire 122
England Buckinghamshire 115
England Cambridgeshire 194
England Cheshire 216
England Cleveland 67
England Cornwall 111
England County Durham 109
England Cumbria 75
England Derbyshire 138
England Devon 185
England Dorset 103
England East Riding of Yorkshire 25
England East Sussex 204
England East Yorkshire 59
England Essex 353
England Gloucestershire 90
England Greater Manchester 237
England Hampshire 351
England Herefordshire 22
England Hertfordshire 213
England Humberside 20
England Isle of Man 7
England Isle of Wight 22
England Kent 407
England Lancashire 310
England Leicestershire 120
England Lincolnshire 155
England London 479
England Merseyside 146
England Middlesex 136
England NE Lincolnshire 12
England Norfolk 161
England North Devon 1
England North Lincolnshire 9
England North Somerset 25
England North Yorkshire 125
England Northamptonshire 129
England Northumberland 41
England Nottinghamshire 187
England Oxfordshire 102
England Rutland 4
England Shropshire 63
England Somerset 122
England South Gloucestershire 24
England South Yorkshire 232
England Staffordshire 152
England Suffolk 144
England Surrey 344
England Tyne & Wear 153
England Warwickshire 96
England West Midlands 283
England West Sussex 159
England West Yorkshire 308
England Wiltshire 129
England Wirral 4
England Worcestershire 56
Northern Ireland -none- 4
Northern Ireland Co. Antrim 101
Northern Ireland Co. Armagh 32
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 69
Northern Ireland Co. Fermanagh 12
Northern Ireland Co. Londonderry 19
Northern Ireland Co. Tyrone 21
Scotland -none- 8
Scotland Aberdeenshire 48
Scotland Angus 15
Scotland Argyll 5
Scotland Argyll & Bute 11
Scotland Arran 1
Scotland Ayrshire 29
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 3
Scotland Dumfries & Galloway 16
Scotland Dumfrieshire 6
Scotland Dunbartonshire 7
Scotland East Ayrshire 4
Scotland East Dunbartonshire 4
Scotland East Lothian 18
Scotland East Renfrewshire 1
Scotland Falkirk 1
Scotland Fife 46
Scotland Grampian 6
Scotland Highland 15
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 2
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 23
Scotland Lothian 22
Scotland Midlothian 24
Scotland Moray 4
Scotland North Ayrshire 4
Scotland North Lanarkshire 30
Scotland Perthshire 7
Scotland Renfrewshire 27
Scotland Ross-shire 10
Scotland Roxburghshire 7
Scotland Scottish Borders 10
Scotland Selkirkshire 5
Scotland Shetland 6
Scotland Shetland Islands 1
Scotland South Ayrshire 2
Scotland South Lanarkshire 11
Scotland Stirlingshire 33
Scotland Strathclyde 85
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 2
Scotland West Lothian 24
Scotland Wigtownshire 1
Wales -none- 5
Wales Anglesey 9
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 15
Wales Conwy 10
Wales Denbighshire 16
Wales Dyfed 2
Wales Flintshire 11
Wales Glamorgan 4
Wales Gwent 41
Wales Gwynedd 18
Wales Mid Glamorgan 30
Wales Monmouthshire 15
Wales Pembrokeshire 23
Wales Powys 13
Wales Rhondda Cynon Taff 10
Wales Rhondda Valley 1
Wales South Glamorgan 46
Wales Vale of Glamorgan 16
Wales West Glamorgan 33

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 112 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 62
Aruba 1
Australia 1371
Austria 25
Bahrain 1
Belarus 2
Belgium 58
Bermuda 3
Bosnia and Herzegovina 7
Brazil 121
Brunei Darussalam 1
Bulgaria 7
Cambodia 1
Canada 828
Canary Islands 5
Chile 27
China 23
Colombia 27
Costa Rica 1
Croatia 13
Cuba 1
Curacao 1
Cyprus 9
Czech Republic 15
Denmark 69
Dominican Republic 3
Ecuador 4
Egypt 5
Eire 503
Estonia 4
Faroe Islands 1
Fiji 1
Finland 74
France 161
Georgia 2
Germany 239
Ghana 1
Gibraltar 7
Greece 17
Guatemala 5
Guernsey 11
Hong Kong 25
Hungary 8
Iceland 16
India 33
Indonesia 9
Iran 6
Iraq 1
Israel 41
Italy 141
Japan 12
Jersey 10
Jordan 4
Kazakhstan 1
Kenya 2
Kuwait 3
Latvia 4
Lebanon 2
Lithuania 2
Luxembourg 4
Macedonia 1
Malaysia 16
Malta 12
Mexico 25
Moldova 2
Monaco 2
Montenegro 1
Morocco 7
Namibia 1
New Zealand 333
Nigeria 2
North Macedonia 1
Norway 142
Oman 5
Pakistan 4
Peru 5
Philippines 10
Poland 83
Portugal 39
Puerto Rico 8
Qatar 6
Republic of Panama 3
Romania 24
Russia 95
Saudi Arabia 13
Senegal 1
Serbia 4
Singapore 17
Slovakia 8
Slovenia 14
South Africa 111
South Korea 8
Spain 156
Sri Lanka 5
Sweden 120
Switzerland 61
Syria 1
Taiwan 8
Thailand 9
The Netherlands 268
Trinidad & Tobago 3
Turkey 27
U.S.A. 7776
Ukraine 10
United Arab Emirates 25
United Kingdom 9939
Uruguay 4
Venezuela 4
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders