Understanding Rare Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique in these times of uncertainty will help us to continue to provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 136 results. Page 1 of 1

Country County No. of Members
England -none- 36
England Avon 115
England Bath & NE Somerset 10
England Bedfordshire 131
England Berkshire 119
England Buckinghamshire 106
England Cambridgeshire 189
England Cheshire 208
England Cleveland 67
England Cornwall 111
England County Durham 103
England Cumbria 74
England Derbyshire 132
England Devon 180
England Dorset 104
England East Riding of Yorkshire 20
England East Sussex 204
England East Yorkshire 58
England Essex 337
England Gloucestershire 92
England Greater Manchester 222
England Hampshire 337
England Herefordshire 22
England Hertfordshire 199
England Humberside 20
England Isle of Man 7
England Isle of Wight 22
England Kent 400
England Lancashire 296
England Leicestershire 118
England Lincolnshire 148
England London 453
England Merseyside 141
England Middlesex 135
England NE Lincolnshire 11
England Norfolk 150
England North Devon 1
England North Lincolnshire 9
England North Somerset 26
England North Yorkshire 117
England Northamptonshire 123
England Northumberland 40
England Nottinghamshire 184
England Oxfordshire 99
England Rutland 4
England Shropshire 59
England Somerset 118
England South Gloucestershire 24
England South Yorkshire 228
England Staffordshire 142
England Suffolk 143
England Surrey 332
England Tyne & Wear 150
England Vale of Glamorgan 1
England Warwickshire 92
England West Midlands 273
England West Sussex 148
England West Yorkshire 289
England Wiltshire 125
England Wirral 4
England Worcestershire 51
Northern Ireland -none- 4
Northern Ireland Co. Antrim 97
Northern Ireland Co. Armagh 30
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 65
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 19
Northern Ireland Co. Tyrone 20
Scotland -none- 9
Scotland Aberdeenshire 48
Scotland Angus 15
Scotland Argyll 5
Scotland Argyll & Bute 9
Scotland Ayrshire 29
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 4
Scotland Dumfries & Galloway 15
Scotland Dumfrieshire 6
Scotland Dunbartonshire 7
Scotland Dunfermline 1
Scotland East Ayrshire 4
Scotland East Dunbartonshire 4
Scotland East Lothian 18
Scotland Fife 44
Scotland Grampian 6
Scotland Highland 14
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 19
Scotland Lothian 23
Scotland Midlothian 23
Scotland Moray 4
Scotland North Ayrshire 4
Scotland North Lanarkshire 30
Scotland Perthshire 7
Scotland Renfrewshire 26
Scotland Ross-shire 11
Scotland Roxburghshire 7
Scotland Scottish Borders 10
Scotland Selkirkshire 5
Scotland Shetland 4
Scotland South Ayrshire 1
Scotland South Lanarkshire 9
Scotland Stirlingshire 32
Scotland Strathclyde 84
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 3
Scotland West Lothian 23
Scotland Wigtownshire 1
Wales -none- 5
Wales Anglesey 9
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 14
Wales Conwy 10
Wales Denbighshire 15
Wales Dyfed 2
Wales Flintshire 8
Wales Gwent 40
Wales Gwynedd 18
Wales Mid Glamorgan 29
Wales Monmouthshire 11
Wales Pembrokeshire 23
Wales Powys 15
Wales Rhondda Cynon Taff 10
Wales Rhondda Valley 1
Wales South Glamorgan 46
Wales Vale of Glamorgan 16
Wales West Glamorgan 34

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 109 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 59
Aruba 1
Australia 1304
Austria 23
Belarus 2
Belgium 55
Bermuda 3
Bosnia and Herzegovina 6
Brazil 106
Brunei Darussalam 1
Bulgaria 7
Cambodia 1
Canada 786
Canary Islands 5
Chile 26
China 21
Colombia 25
Costa Rica 1
Croatia 12
Cuba 1
Curacao 1
Cyprus 8
Czech Republic 10
Denmark 66
Dominican Republic 3
Ecuador 4
Egypt 5
Eire 483
Estonia 4
Faroe Islands 1
Fiji 1
Finland 66
France 156
Georgia 1
Germany 219
Ghana 1
Gibraltar 7
Greece 17
Guatemala 5
Guernsey 11
Hong Kong 24
Hungary 8
Iceland 14
India 31
Indonesia 9
Iran 6
Iraq 1
Israel 40
Italy 129
Japan 11
Jersey 8
Jordan 4
Kenya 2
Kuwait 2
Latvia 4
Lebanon 2
Lithuania 2
Luxembourg 4
Malaysia 16
Malta 12
Mexico 20
Moldova 1
Monaco 2
Montenegro 1
Morocco 5
Namibia 1
New Zealand 316
Nigeria 2
North Macedonia 1
Norway 137
Oman 5
Pakistan 4
Peru 5
Philippines 9
Poland 77
Portugal 36
Puerto Rico 7
Qatar 6
Republic of Panama 2
Romania 20
Russia 78
Saudi Arabia 10
Senegal 1
Serbia 3
Singapore 15
Slovakia 8
Slovenia 14
South Africa 106
South Korea 8
Spain 138
Sri Lanka 5
Sweden 112
Switzerland 58
Syria 1
Taiwan 8
Thailand 8
The Netherlands 262
Trinidad & Tobago 3
Turkey 23
U.S.A. 7476
Ukraine 10
United Arab Emirates 23
United Kingdom 9485
Uruguay 4
Venezuela 3
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders