Understanding Rare Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique in these times of uncertainty will help us to continue to provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 137 results. Page 1 of 1

Country County No. of Members
England -none- 36
England Avon 121
England Bath & NE Somerset 11
England Bedfordshire 135
England Berkshire 122
England Buckinghamshire 111
England Budkinghamshire 1
England Cambridgeshire 192
England Cheshire 213
England Cleveland 68
England Cornwall 111
England County Durham 107
England Cumbria 74
England Derbyshire 137
England Devon 182
England Dorset 105
England East Riding of Yorkshire 24
England East Sussex 207
England East Yorkshire 58
England Essex 343
England Gloucestershire 94
England Greater Manchester 232
England Hampshire 351
England Herefordshire 22
England Hertfordshire 208
England Humberside 20
England Isle of Man 7
England Isle of Wight 22
England Kent 408
England Lancashire 304
England Leicestershire 119
England Lincolnshire 151
England London 469
England Merseyside 147
England Middlesex 137
England NE Lincolnshire 11
England Norfolk 156
England North Devon 1
England North Lincolnshire 9
England North Somerset 27
England North Yorkshire 121
England Northamptonshire 124
England Northumberland 41
England Nottinghamshire 187
England Oxfordshire 101
England Rutland 4
England Shropshire 59
England Somerset 120
England South Gloucestershire 24
England South Yorkshire 229
England Staffordshire 148
England Suffolk 144
England Surrey 341
England Tyne & Wear 153
England Warwickshire 96
England West Midlands 279
England West Sussex 156
England West Yorkshire 299
England Wiltshire 129
England Wirral 4
England Worcestershire 53
Northern Ireland -none- 4
Northern Ireland Co. Antrim 98
Northern Ireland Co. Armagh 31
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 67
Northern Ireland Co. Fermanagh 12
Northern Ireland Co. Londonderry 19
Northern Ireland Co. Tyrone 21
Scotland -none- 9
Scotland Aberdeenshire 48
Scotland Angus 15
Scotland Argyll 5
Scotland Argyll & Bute 10
Scotland Ayrshire 30
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 4
Scotland Dumfries & Galloway 16
Scotland Dumfrieshire 6
Scotland Dunbartonshire 7
Scotland East Ayrshire 4
Scotland East Dunbartonshire 4
Scotland East Lothian 18
Scotland East Renfrewshire 1
Scotland Fife 45
Scotland Grampian 6
Scotland Highland 14
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 2
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 21
Scotland Lothian 23
Scotland Midlothian 24
Scotland Moray 4
Scotland North Ayrshire 4
Scotland North Lanarkshire 30
Scotland Perthshire 7
Scotland Renfrewshire 26
Scotland Ross-shire 10
Scotland Roxburghshire 7
Scotland Scottish Borders 10
Scotland Selkirkshire 5
Scotland Shetland 5
Scotland South Ayrshire 2
Scotland South Lanarkshire 9
Scotland Stirlingshire 33
Scotland Strathclyde 84
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 3
Scotland West Lothian 24
Scotland Wigtownshire 1
Wales -none- 5
Wales Anglesey 9
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 14
Wales Conwy 10
Wales Denbighshire 16
Wales Dyfed 2
Wales Flintshire 10
Wales Glamorgan 2
Wales Gwent 41
Wales Gwynedd 18
Wales Mid Glamorgan 29
Wales Monmouthshire 13
Wales Pembrokeshire 23
Wales Powys 15
Wales Rhondda Cynon Taff 10
Wales Rhondda Valley 1
Wales South Glamorgan 46
Wales Vale of Glamorgan 17
Wales West Glamorgan 34

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 110 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 62
Aruba 1
Australia 1346
Austria 23
Belarus 2
Belgium 55
Bermuda 3
Bosnia and Herzegovina 7
Brazil 114
Brunei Darussalam 1
Bulgaria 7
Cambodia 1
Canada 812
Canary Islands 5
Chile 27
China 22
Colombia 27
Costa Rica 1
Croatia 13
Cuba 1
Curacao 1
Cyprus 9
Czech Republic 13
Denmark 67
Dominican Republic 3
Ecuador 4
Egypt 5
Eire 495
Estonia 4
Faroe Islands 1
Fiji 1
Finland 70
France 157
Georgia 1
Germany 230
Ghana 1
Gibraltar 7
Greece 17
Guatemala 5
Guernsey 11
Hong Kong 24
Hungary 8
Iceland 15
India 32
Indonesia 9
Iran 6
Iraq 1
Israel 41
Italy 135
Japan 12
Jersey 9
Jordan 4
Kenya 2
Kuwait 3
Latvia 4
Lebanon 2
Lithuania 2
Luxembourg 4
Macedonia 1
Malaysia 16
Malta 12
Mexico 22
Moldova 1
Monaco 2
Montenegro 1
Morocco 6
Namibia 1
New Zealand 325
Nigeria 2
North Macedonia 1
Norway 140
Oman 5
Pakistan 4
Peru 5
Philippines 10
Poland 79
Portugal 39
Puerto Rico 8
Qatar 6
Republic of Panama 2
Romania 22
Russia 87
Saudi Arabia 12
Senegal 1
Serbia 3
Singapore 16
Slovakia 8
Slovenia 14
South Africa 109
South Korea 8
Spain 147
Sri Lanka 5
Sweden 119
Switzerland 61
Syria 1
Taiwan 8
Thailand 8
The Netherlands 266
Trinidad & Tobago 3
Turkey 26
U.S.A. 7632
Ukraine 10
United Arab Emirates 25
United Kingdom 9726
Uruguay 4
Venezuela 4
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders