Understanding Rare Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

BECOME A MEMBER

Your Support Counts Now More Than Ever!


A donation to Unique in these times of uncertainty will help us to continue to provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

Donate

Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
View

Found 135 results. Page 1 of 1

Country County No. of Members
England -none- 36
England Avon 116
England Bath & NE Somerset 11
England Bedfordshire 134
England Berkshire 120
England Buckinghamshire 111
England Cambridgeshire 191
England Cheshire 212
England Cleveland 67
England Cornwall 111
England County Durham 107
England Cumbria 74
England Derbyshire 136
England Devon 182
England Dorset 105
England East Riding of Yorkshire 23
England East Sussex 206
England East Yorkshire 58
England Essex 342
England Gloucestershire 92
England Greater Manchester 228
England Hampshire 345
England Herefordshire 22
England Hertfordshire 204
England Humberside 20
England Isle of Man 7
England Isle of Wight 22
England Kent 406
England Lancashire 300
England Leicestershire 119
England Lincolnshire 151
England London 460
England Merseyside 146
England Middlesex 136
England NE Lincolnshire 11
England Norfolk 156
England North Devon 1
England North Lincolnshire 9
England North Somerset 26
England North Yorkshire 120
England Northamptonshire 124
England Northumberland 40
England Nottinghamshire 187
England Oxfordshire 101
England Rutland 4
England Shropshire 59
England Somerset 119
England South Gloucestershire 24
England South Yorkshire 228
England Staffordshire 146
England Suffolk 144
England Surrey 337
England Tyne & Wear 151
England Warwickshire 96
England West Midlands 278
England West Sussex 153
England West Yorkshire 296
England Wiltshire 128
England Wirral 4
England Worcestershire 53
Northern Ireland -none- 4
Northern Ireland Co. Antrim 97
Northern Ireland Co. Armagh 30
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 67
Northern Ireland Co. Fermanagh 12
Northern Ireland Co. Londonderry 19
Northern Ireland Co. Tyrone 21
Scotland -none- 9
Scotland Aberdeenshire 48
Scotland Angus 15
Scotland Argyll 5
Scotland Argyll & Bute 9
Scotland Ayrshire 30
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 4
Scotland Dumfries & Galloway 16
Scotland Dumfrieshire 6
Scotland Dunbartonshire 7
Scotland Dunfermline 1
Scotland East Ayrshire 4
Scotland East Dunbartonshire 4
Scotland East Lothian 18
Scotland Fife 44
Scotland Grampian 6
Scotland Highland 14
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 2
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 20
Scotland Lothian 23
Scotland Midlothian 23
Scotland Moray 4
Scotland North Ayrshire 4
Scotland North Lanarkshire 30
Scotland Perthshire 7
Scotland Renfrewshire 26
Scotland Ross-shire 10
Scotland Roxburghshire 7
Scotland Scottish Borders 10
Scotland Selkirkshire 5
Scotland Shetland 5
Scotland South Ayrshire 2
Scotland South Lanarkshire 9
Scotland Stirlingshire 33
Scotland Strathclyde 84
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 3
Scotland West Lothian 24
Scotland Wigtownshire 1
Wales -none- 5
Wales Anglesey 9
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 14
Wales Conwy 10
Wales Denbighshire 15
Wales Dyfed 2
Wales Flintshire 10
Wales Gwent 41
Wales Gwynedd 18
Wales Mid Glamorgan 29
Wales Monmouthshire 12
Wales Pembrokeshire 23
Wales Powys 15
Wales Rhondda Cynon Taff 10
Wales Rhondda Valley 1
Wales South Glamorgan 46
Wales Vale of Glamorgan 17
Wales West Glamorgan 34

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
View

Found 110 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 62
Aruba 1
Australia 1331
Austria 23
Belarus 2
Belgium 55
Bermuda 3
Bosnia and Herzegovina 7
Brazil 112
Brunei Darussalam 1
Bulgaria 7
Cambodia 1
Canada 806
Canary Islands 5
Chile 27
China 22
Colombia 26
Costa Rica 1
Croatia 13
Cuba 1
Curacao 1
Cyprus 9
Czech Republic 12
Denmark 66
Dominican Republic 3
Ecuador 4
Egypt 5
Eire 490
Estonia 4
Faroe Islands 1
Fiji 1
Finland 68
France 157
Georgia 1
Germany 228
Ghana 1
Gibraltar 7
Greece 17
Guatemala 5
Guernsey 11
Hong Kong 24
Hungary 8
Iceland 15
India 32
Indonesia 9
Iran 6
Iraq 1
Israel 41
Italy 132
Japan 12
Jersey 8
Jordan 4
Kenya 2
Kuwait 2
Latvia 4
Lebanon 2
Lithuania 2
Luxembourg 4
Macedonia 1
Malaysia 16
Malta 12
Mexico 21
Moldova 1
Monaco 2
Montenegro 1
Morocco 5
Namibia 1
New Zealand 321
Nigeria 2
North Macedonia 1
Norway 139
Oman 5
Pakistan 4
Peru 5
Philippines 10
Poland 79
Portugal 38
Puerto Rico 8
Qatar 6
Republic of Panama 2
Romania 20
Russia 85
Saudi Arabia 11
Senegal 1
Serbia 3
Singapore 16
Slovakia 8
Slovenia 14
South Africa 108
South Korea 8
Spain 145
Sri Lanka 5
Sweden 116
Switzerland 60
Syria 1
Taiwan 8
Thailand 8
The Netherlands 264
Trinidad & Tobago 3
Turkey 25
U.S.A. 7581
Ukraine 10
United Arab Emirates 25
United Kingdom 9640
Uruguay 4
Venezuela 4
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders