Understanding Rare
Chromosome and Gene Disorders


Without your support, we couldn't go on helping anyone affected by rare chromosome and gene disorders. Please scroll down to make a donation today so we can help even more families and their special children.

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How your donations help

In just one month recently, thanks to your support, we were able to achieve the following:

  • Our helpline handled 975 emails and 81 phone calls from families and professionals.
  • We welcomed and helped over 150 new families, providing support and information they weren't able to get elsewhere
  • We surpassed 16,000 member families, representing over 18,000 individuals with a RCD.
  • We produced a brand new information guide - on FOXP2 Syndrome - a world first and the latest in our series of free guides to hundreds of rare chromosome and gene disorders
  • We produced the latest in our series of Practical Guides for Families -  on Travel Insurance, written for families affected by chromosome and single gene disorders.