Understanding Rare
Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique helps us provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 139 results. Page 1 of 1

Country County No. of Members
England -none- 35
England Avon 112
England Bath & NE Somerset 8
England Bedfordhshire 1
England Bedfordshire 125
England Berkshire 117
England Buckinghamshire 97
England Cambridgeshire 166
England Cheshire 199
England Cleveland 66
England Cornwall 100
England County Durham 84
England Cumbria 70
England Derbyshire 116
England Devon 166
England Dorset 99
England East Riding of Yorkshire 12
England East Sussex 188
England East Yorkshire 54
England Essex 311
England Gloucestershire 91
England Greater Manchester 194
England Hampshire 308
England Herefordshire 20
England Hertfordshire 175
England Humberside 20
England Isle of Man 7
England Isle of Wight 21
England Istanbul 1
England Kent 373
England Lancashire 272
England Leicestershire 102
England Lincolnshire 129
England London 422
England Merseyside 124
England Middlesex 130
England NE Lincolnshire 9
England Norfolk 130
England North Lincolnshire 7
England North Somerset 23
England North Yorkshire 105
England Northamptonshire 110
England Northumberland 38
England Nottingham 1
England Nottinghamshire 173
England Oxfordshire 93
England Rutland 3
England Shropshire 54
England Somerset 108
England South Glamorgan 1
England South Gloucestershire 21
England South Yorkshire 205
England Staffordshire 130
England Strathclyde 1
England Suffolk 126
England Surrey 306
England Tyne & Wear 129
England Warwickshire 78
England West Midlands 251
England West Sussex 129
England West Yorkshire 246
England Wiltshire 113
England Wirral 3
England Worcestershire 47
Northern Ireland -none- 3
Northern Ireland Co. Antrim 93
Northern Ireland Co. Armagh 21
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 57
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 16
Northern Ireland Co. Tyrone 17
Scotland -none- 9
Scotland Aberdeenshire 42
Scotland Angus 13
Scotland Argyll 5
Scotland Argyll & Bute 8
Scotland Ayrshire 25
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 3
Scotland Dumfries & Galloway 12
Scotland Dumfrieshire 5
Scotland Dunbartonshire 6
Scotland East Ayrshire 5
Scotland East Dunbartonshire 3
Scotland East Lothian 18
Scotland Edinburgh 2
Scotland Fife 43
Scotland Grampian 6
Scotland Highland 14
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 15
Scotland Lothian 22
Scotland Midlothian 20
Scotland Moray 3
Scotland North Ayrshire 4
Scotland North Lanarkshire 27
Scotland Perthshire 7
Scotland Renfrewshire 22
Scotland Ross-shire 11
Scotland Roxburghshire 6
Scotland Scottish Borders 9
Scotland Selkirkshire 5
Scotland Shetland 5
Scotland South Lanarkshire 10
Scotland Stirlingshire 29
Scotland Strathclyde 80
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 2
Scotland West Lothian 21
Scotland Wigtownshire 1
Wales -none- 3
Wales Anglesey 7
Wales Caerphilly 3
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 13
Wales Conwy 10
Wales Denbighshire 15
Wales Dyfed 2
Wales Flintshire 8
Wales Gwent 38
Wales Gwynedd 18
Wales Mid Glamorgan 28
Wales Monmouthshire 10
Wales Pembrokeshire 19
Wales Powys 13
Wales Rhondda Cynon Taf 1
Wales Rhondda Cynon Taff 6
Wales South Glamorgan 38
Wales Vale of Glamorgan 14
Wales West Glamorgan 32

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 110 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 49
Aruba 1
Australia 1170
Austria 19
Belarus 2
Belgium 47
Bermuda 3
Bosnia and Herzegovina 5
Brazil 83
Brunei Darussalam 1
Bulgaria 6
Canada 691
Canary Islands 5
Chile 26
China 14
Colombia 16
Costa Rica 1
Croatia 9
Cuba 1
Curacao 1
Cyprus 6
Czech Republic 9
Denmark 54
Dominican Republic 1
Ecuador 4
Egypt 3
Eire 443
Estonia 3
Faroe Islands 1
Fiji 1
Finland 59
France 139
Georgia 1
Germany 197
Ghana 1
Gibraltar 7
Greece 15
Guatemala 5
Guernsey 11
Holland 1
Hong Kong 21
Hungary 8
Iceland 10
India 27
Indonesia 7
Iran 4
Israel 33
Italy 115
Japan 10
Jersey 7
Jordan 4
Kenya 2
Kuwait 1
Latvia 3
Lebanon 2
Lithuania 1
Luxembourg 3
Malaysia 12
Malta 11
Mexico 19
Moldova 1
Monaco 2
Montenegro 1
Morocco 4
Namibia 1
New Zealand 278
Nigeria 2
Norway 132
Oman 2
Pakistan 4
Panama 1
Peru 3
Philippines 9
Poland 55
Portugal 30
Puerto Rico 8
Qatar 3
Republic of Panama 1
Romania 15
Russia 67
Saudi Arabia 10
Senegal 1
Serbia 3
Singapore 15
Slovakia 6
Slovenia 12
South Africa 101
South Korea 7
Spain 114
Sri Lanka 4
Sultanate of Oman 2
Sweden 102
Switzerland 52
Syria 1
Taiwan 8
Thailand 5
The Netherlands 243
Trinidad & Tobago 3
Turkey 19
U.A.E. 1
U.S.A. 6725
Ukraine 9
United Arab Emirates 21
United Kingdom 8593
Uruguay 3
Venezuela 4
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders