Understanding Rare
Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique helps us provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 136 results. Page 1 of 1

Country County No. of Members
England -none- 18
England Avon 103
England Bath & NE Somerset 6
England Bedfordshire 117
England Berkshire 104
England Buckinghamshire 86
England Cambridgeshire 159
England Cheshire 185
England Cleveland 64
England Cornwall 91
England County Durham 67
England Cumbria 58
England Derbyshire 104
England Devon 149
England Dorset 95
England East Riding 2
England East Riding of Yorkshire 6
England East Sussex 168
England East Yorkshire 47
England Essex 281
England Gloucestershire 82
England Greater Manchester 153
England Hampshire 280
England Herefordshire 16
England Hertfordshire 157
England Humberside 21
England Isle of Man 7
England Isle of Wight 21
England Kent 326
England Lancashire 244
England Leicestershire 89
England Lincolnshire 108
England London 394
England Merseyside 106
England Middlesex 125
England NE Lincolnshire 8
England Norfolk 116
England North Lincolnshire 4
England North Somerset 22
England North Yorkshire 84
England Northamptonshire 107
England Northumberland 33
England Nottinghamshire 160
England Oxfordshire 80
England Rutland 3
England Shropshire 46
England Somerset 93
England South Gloucestershire 17
England South Yorkshire 170
England Staffordshire 116
England Strathclyde 1
England Suffolk 111
England Surrey 288
England Tyne & Wear 116
England Warwickshire 73
England West Midlands 211
England West Sussex 109
England West Yorkshire 216
England Wiltshire 95
England Wirral 3
England Worcestershire 40
Northern Ireland -none- 1
Northern Ireland Co. Antrim 77
Northern Ireland Co. Armagh 19
Northern Ireland Co. Derry 9
Northern Ireland Co. Down 51
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 15
Northern Ireland Co. Tyrone 15
Scotland -none- 6
Scotland Aberdeenshire 37
Scotland Angus 13
Scotland Argyll 4
Scotland Argyll & Bute 8
Scotland Ayrshire 22
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 2
Scotland Dumfries & Galloway 11
Scotland Dumfrieshire 5
Scotland Dunbartonshire 3
Scotland East Ayrshire 4
Scotland East Dunbartonshire 3
Scotland East Lothian 15
Scotland Edinburgh 2
Scotland Fife 39
Scotland Glasgow 1
Scotland Grampian 7
Scotland Highland 12
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 13
Scotland Lothian 24
Scotland Midlothian 18
Scotland Moray 2
Scotland North Ayrshire 4
Scotland North Lanarkshire 21
Scotland Perthshire 6
Scotland Renfrewshire 21
Scotland Ross-shire 9
Scotland Roxburghshire 6
Scotland Scottish Borders 5
Scotland Selkirkshire 5
Scotland Shetland 5
Scotland South Lanarkshire 9
Scotland Stirlingshire 24
Scotland Strathclyde 80
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 2
Scotland West Lothian 16
Scotland Wigtownshire 1
Wales -none- 1
Wales Anglesey 6
Wales Caerphilly 3
Wales Carmarthenshire 19
Wales Ceredigion 9
Wales Clwyd 10
Wales Conwy 7
Wales Denbighshire 13
Wales Dyfed 2
Wales Flintshire 7
Wales Gwent 36
Wales Gwynedd 15
Wales Mid Glamorgan 26
Wales Monmouthshire 10
Wales Pembrokeshire 18
Wales Powys 13
Wales Rhondda Cynon Taff 6
Wales South Glamorgan 33
Wales Vale of Glamorgan 11
Wales West Glamorgan 27

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 107 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Anguilla 1
Argentina 40
Australia 1024
Austria 14
Belarus 2
Belgium 37
Bermuda 3
Bosnia and Herzegovina 2
Brazil 65
Brunei Darussalam 1
Bulgaria 5
Canada 586
Canary Islands 5
Chile 21
China 8
Colombia 11
Costa Rica 1
Croatia 7
Cuba 1
Curacao 1
Cyprus 6
Czech Republic 7
Denmark 48
Dominican Republic 1
Ecuador 3
Egypt 3
Eire 411
Estonia 3
Faroe Islands 1
Fiji 1
Finland 51
France 126
Germany 168
Ghana 1
Gibraltar 5
Greece 15
Guatemala 3
Guernsey 9
Holland 1
Hong Kong 19
Hungary 6
Iceland 7
India 25
Indonesia 5
Iran 3
Israel 28
Italy 97
Japan 9
Jersey 6
Jordan 4
Kenya 1
Kuwait 1
Latvia 2
Lithuania 1
Luxembourg 3
Malaysia 8
Malta 10
Mexico 17
Monaco 2
Montenegro 1
Morocco 4
Namibia 1
Netherlands 1
New Zealand 243
Nigeria 2
Norway 122
Oman 1
Pakistan 4
Panama 1
Peru 3
Philippines 8
Poland 42
Portugal 26
Puerto Rico 6
Qatar 3
Republic of Panama 1
Romania 11
Russia 45
Saudi Arabia 8
Senegal 1
Singapore 14
Slovakia 5
Slovenia 11
South Africa 81
South Korea 6
Spain 98
Sri Lanka 3
Sultanate of Oman 2
Sweden 94
Switzerland 47
Syria 1
Taiwan 7
Thailand 5
The Netherlands 215
Trinidad & Tobago 3
Turkey 14
U.S.A 4
U.S.A. 5903
Ukraine 5
United Arab Emirates 16
United Kingdom 7594
Uruguay 3
Venezuela 4
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders