Understanding Rare
Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique helps us provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
View

Found 132 results. Page 1 of 1

Country County No. of Members
England -none- 39
England Avon 116
England Bath & NE Somerset 10
England Bedfordshire 129
England Berkshire 116
England Buckinghamshire 102
England Cambridgeshire 179
England Cheshire 204
England Cleveland 68
England Cornwall 108
England County Durham 96
England Cumbria 73
England Derbyshire 129
England Devon 177
England Dorset 101
England East Riding of Yorkshire 17
England East Sussex 201
England East Yorkshire 58
England Essex 330
England Gloucestershire 90
England Greater Manchester 214
England Hampshire 325
England Herefordshire 21
England Hertfordshire 184
England Humberside 20
England Isle of Man 7
England Isle of Wight 22
England Kent 394
England Lancashire 287
England Leicestershire 114
England Lincolnshire 143
England London 442
England Merseyside 134
England Middlesex 133
England NE Lincolnshire 11
England Norfolk 146
England North Lincolnshire 8
England North Somerset 25
England North Yorkshire 112
England Northamptonshire 117
England Northumberland 41
England Nottinghamshire 181
England Oxfordshire 97
England Rutland 4
England Shropshire 60
England Somerset 118
England South Gloucestershire 25
England South Yorkshire 221
England Staffordshire 139
England Suffolk 140
England Surrey 321
England Tyne & Wear 143
England Warwickshire 85
England West Midlands 266
England West Sussex 142
England West Yorkshire 279
England Wiltshire 122
England Wirral 4
England Worcestershire 51
Northern Ireland -none- 4
Northern Ireland Co. Antrim 94
Northern Ireland Co. Armagh 24
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 64
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 17
Northern Ireland Co. Tyrone 19
Scotland -none- 9
Scotland Aberdeenshire 45
Scotland Angus 14
Scotland Argyll 5
Scotland Argyll & Bute 9
Scotland Ayrshire 28
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 4
Scotland Dumfries & Galloway 16
Scotland Dumfrieshire 5
Scotland Dunbartonshire 7
Scotland East Ayrshire 4
Scotland East Dunbartonshire 3
Scotland East Lothian 18
Scotland Fife 43
Scotland Grampian 6
Scotland Highland 13
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 20
Scotland Lothian 23
Scotland Midlothian 22
Scotland Moray 4
Scotland North Ayrshire 4
Scotland North Lanarkshire 30
Scotland Perthshire 7
Scotland Renfrewshire 25
Scotland Ross-shire 11
Scotland Roxburghshire 7
Scotland Scottish Borders 9
Scotland Selkirkshire 5
Scotland Shetland 4
Scotland South Lanarkshire 10
Scotland Stirlingshire 30
Scotland Strathclyde 82
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 3
Scotland West Lothian 22
Scotland Wigtownshire 1
Wales -none- 5
Wales Anglesey 9
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 14
Wales Conwy 10
Wales Denbighshire 15
Wales Dyfed 2
Wales Flintshire 8
Wales Gwent 41
Wales Gwynedd 18
Wales Mid Glamorgan 29
Wales Monmouthshire 11
Wales Pembrokeshire 21
Wales Powys 15
Wales Rhondda Cynon Taff 10
Wales Rhondda Valley 1
Wales South Glamorgan 45
Wales Vale of Glamorgan 16
Wales West Glamorgan 33

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 108 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 56
Aruba 1
Australia 1262
Austria 22
Belarus 2
Belgium 52
Bermuda 3
Bosnia and Herzegovina 5
Brazil 100
Brunei Darussalam 1
Bulgaria 6
Cambodia 1
Canada 752
Canary Islands 5
Chile 26
China 18
Colombia 22
Costa Rica 1
Croatia 12
Cuba 1
Curacao 1
Cyprus 8
Czech Republic 9
Denmark 58
Dominican Republic 3
Ecuador 4
Egypt 5
Eire 477
Estonia 3
Faroe Islands 1
Fiji 1
Finland 65
France 153
Georgia 1
Germany 213
Ghana 1
Gibraltar 7
Greece 16
Guatemala 5
Guernsey 11
Hong Kong 23
Hungary 8
Iceland 14
India 31
Indonesia 9
Iran 5
Iraq 1
Israel 38
Italy 124
Japan 11
Jersey 8
Jordan 4
Kenya 2
Kuwait 2
Latvia 4
Lebanon 2
Lithuania 1
Luxembourg 3
Malaysia 16
Malta 12
Mexico 19
Moldova 1
Monaco 2
Montenegro 1
Morocco 5
Namibia 1
New Zealand 301
Nigeria 2
Norway 137
Oman 5
Pakistan 4
Peru 5
Philippines 9
Poland 68
Portugal 36
Puerto Rico 8
Qatar 6
Republic of Panama 2
Romania 17
Russia 75
Saudi Arabia 10
Senegal 1
Serbia 3
Singapore 15
Slovakia 8
Slovenia 14
South Africa 104
South Korea 8
Spain 129
Sri Lanka 5
Sweden 108
Switzerland 55
Syria 1
Taiwan 8
Thailand 7
The Netherlands 259
Trinidad & Tobago 3
Turkey 22
U.S.A. 7269
Ukraine 9
United Arab Emirates 23
United Kingdom 9222
Uruguay 4
Venezuela 3
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders