Understanding Rare
Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

BECOME A MEMBER

Your Support Counts


A donation to Unique helps us provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

Donate

Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
View

Found 142 results. Page 1 of 1

Country County No. of Members
England -none- 27
England Avon 109
England Bath & NE Somerset 8
England Bedfordhshire 1
England Bedfordshire 125
England Berkshire 116
England Buckinghamshire 94
England Cambridgeshire 164
England Carmarthenshire 1
England Cheshire 196
England Cleveland 65
England Cornwall 96
England County Durham 81
England Cumbria 68
England Derbyshire 112
England Devon 162
England Dorset 98
England East Riding 1
England East Riding of Yorkshire 11
England East Sussex 186
England East Yorkshire 54
England Essex 303
England Gloucestershire 89
England Greater Manchester 187
England Hampshire 305
England Herefordshire 19
England Hertfordshire 172
England Humberside 20
England Isle of Man 8
England Isle of Wight 21
England Istanbul 1
England Kent 361
England Lancashire 266
England Leicestershire 102
England Lincolnshire 125
England London 417
England Merseyside 124
England Middlesex 129
England NE Lincolnshire 8
England Norfolk 126
England North Lincolnshire 7
England North Somerset 23
England North Yorkshire 99
England Northamptonshire 108
England Northumberland 36
England Nottinghamshire 170
England Oxfordshire 90
England Rutland 3
England Shropshire 51
England Somerset 108
England South Glamorgan 1
England South Gloucestershire 21
England South Yorkshire 201
England Staffordshire 124
England Strathclyde 1
England Suffolk 124
England Surrey 306
England Tyne & Wear 126
England Warwickshire 78
England West Midlands 244
England West Sussex 127
England West Yorkshire 239
England Wiltshire 113
England Wirral 3
England Worcestershire 46
Northern Ireland -none- 3
Northern Ireland Co. Antrim 87
Northern Ireland Co. Armagh 22
Northern Ireland Co. Derry 9
Northern Ireland Co. Down 55
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 16
Northern Ireland Co. Tyrone 16
Northern Ireland County Antrim 1
Northern Ireland County Down 1
Northern Ireland County Tyrone 1
Scotland -none- 8
Scotland Aberdeenshire 41
Scotland Angus 13
Scotland Argyll 5
Scotland Argyll & Bute 8
Scotland Ayrshire 25
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 2
Scotland Dumfries & Galloway 11
Scotland Dumfrieshire 5
Scotland Dunbartonshire 4
Scotland East Ayrshire 5
Scotland East Dunbartonshire 3
Scotland East Lothian 18
Scotland Edinburgh 2
Scotland Fife 41
Scotland Grampian 7
Scotland Highland 14
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 15
Scotland Lothian 22
Scotland Midlothian 20
Scotland Moray 2
Scotland North Ayrshire 4
Scotland North Lanarkshire 26
Scotland Perthshire 7
Scotland Renfrewshire 23
Scotland Ross-shire 10
Scotland Roxburghshire 6
Scotland Scottish Borders 8
Scotland Selkirkshire 5
Scotland Shetland 5
Scotland South Lanarkshire 9
Scotland Stirlingshire 27
Scotland Strathclyde 81
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 2
Scotland West Lothian 18
Scotland Wigtownshire 1
Wales -none- 3
Wales Anglesey 7
Wales Caerphilly 3
Wales Carmarthenshire 20
Wales Ceredigion 11
Wales Clwyd 13
Wales Conwy 10
Wales Denbighshire 15
Wales Dyfed 2
Wales Flintshire 8
Wales Gwent 37
Wales Gwynedd 17
Wales Mid Glamorgan 27
Wales Monmouthshire 10
Wales Pembrokeshire 19
Wales Powys 14
Wales Rhondda Cynon Taff 6
Wales South Glamorgan 38
Wales Vale of Glamorgan 13
Wales West Glamorgan 32

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
View

Found 110 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 48
Aruba 1
Australia 1137
Austria 18
Belarus 2
Belgium 46
Bermuda 3
Bosnia and Herzegovina 5
Brazil 79
Brunei Darussalam 1
Bulgaria 6
Canada 668
Canary Islands 5
Chile 23
China 12
Colombia 16
Costa Rica 1
Croatia 8
Cuba 1
Curacao 1
Cyprus 6
Czech Republic 9
Denmark 52
Dominican Republic 1
Ecuador 4
Egypt 3
Eire 432
Estonia 3
Faroe Islands 1
Fiji 1
Finland 58
France 138
Germany 193
Ghana 1
Gibraltar 6
Greece 15
Guatemala 5
Guernsey 11
Holland 1
Hong Kong 20
Hungary 8
Iceland 9
India 27
Indonesia 7
Iran 4
Israel 32
Italy 113
Japan 9
Jersey 7
Jordan 4
Kenya 2
Kuwait 1
Latvia 3
Lebanon 2
Lithuania 1
Luxembourg 3
Malaysia 10
Malta 11
Mexico 17
Moldova 1
Monaco 2
Montenegro 1
Morocco 4
Namibia 1
New Zealand 271
Nigeria 2
Norway 131
Oman 2
Pakistan 4
Panama 1
Peru 3
Philippines 9
Poland 50
Portugal 29
Puerto Rico 6
Qatar 3
Republic of Panama 1
Romania 14
Russia 57
Saudi Arabia 10
Senegal 1
Serbia 3
Singapore 15
Slovakia 6
Slovenia 12
South Africa 92
South Korea 7
Spain 108
Sri Lanka 4
Sultanate of Oman 2
Sweden 101
Switzerland 52
Syria 1
Taiwan 8
Thailand 5
The Netherlands 238
Trinidad & Tobago 3
Turkey 18
U.A.E. 1
U.S.A 1
U.S.A. 6551
Ukraine 8
United Arab Emirates 21
United Kingdom 8373
Uruguay 3
Venezuela 4
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders