Understanding Rare
Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique helps us provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 140 results. Page 1 of 1

Country County No. of Members
England -none- 40
England Avon 116
England Bath & NE Somerset 10
England Bedfordhshire 1
England Bedfordshire 131
England Berkshire 117
England Buckinghamshire 100
England Cambridgeshire 176
England Cheshire 202
England Cleveland 67
England Cornwall 105
England County Durham 94
England Cumbria 71
England Derbyshire 123
England Devon 177
England Dorset 102
England East Riding of Yorkshire 16
England East Sussex 198
England East Yorkshire 55
England Essex 326
England Gloucestershire 91
England Greater Manchester 209
England Hampshire 322
England Herefordshire 21
England Hertfordshire 182
England Humberside 20
England Isle of Man 7
England Isle of Wight 22
England Istanbul 1
England Kent 387
England Lancashire 286
England Leicestershire 109
England Lincolnshire 139
England London 441
England Merseyside 129
England Middlesex 131
England NE Lincolnshire 11
England Norfolk 142
England North Lincolnshire 8
England North Somerset 23
England North Yorkshire 110
England Northamptonshire 113
England Northumberland 40
England Nottingham 1
England Nottinghamshire 175
England Oxfordshire 95
England Rutland 4
England Shropshire 58
England Somerset 114
England South Glamorgan 1
England South Gloucestershire 24
England South Yorkshire 218
England Staffordshire 137
England Strathclyde 1
England Suffolk 135
England Surrey 317
England Tyne & Wear 139
England Vale of Glamorgan 1
England Warwickshire 83
England West Midlands 262
England West Sussex 139
England West Yorkshire 271
England Wiltshire 122
England Wirral 4
England Worcestershire 48
Northern Ireland -none- 3
Northern Ireland Co. Antrim 96
Northern Ireland Co. Armagh 24
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 62
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 17
Northern Ireland Co. Tyrone 19
Scotland -none- 10
Scotland Aberdeenshire 44
Scotland Angus 13
Scotland Argyll 5
Scotland Argyll & Bute 8
Scotland Ayrshire 27
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 4
Scotland Dumfries & Galloway 15
Scotland Dumfrieshire 5
Scotland Dunbartonshire 7
Scotland East Ayrshire 5
Scotland East Dunbartonshire 3
Scotland East Lothian 18
Scotland Edinburgh 2
Scotland Fife 42
Scotland Grampian 6
Scotland Highland 13
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 17
Scotland Lothian 23
Scotland Midlothian 22
Scotland Moray 4
Scotland North Ayrshire 4
Scotland North Lanarkshire 28
Scotland Perthshire 7
Scotland Renfrewshire 24
Scotland Ross-shire 11
Scotland Roxburghshire 7
Scotland Scottish Borders 9
Scotland Selkirkshire 5
Scotland Shetland 4
Scotland South Lanarkshire 10
Scotland Stirlingshire 30
Scotland Strathclyde 83
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 3
Scotland West Lothian 22
Scotland Wigtownshire 1
Wales -none- 6
Wales Anglesey 8
Wales Caerphilly 2
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 13
Wales Conwy 10
Wales Denbighshire 16
Wales Dyfed 2
Wales Flintshire 8
Wales Gwent 40
Wales Gwynedd 18
Wales Mid Glamorgan 28
Wales Monmouthshire 11
Wales Pembrokeshire 21
Wales Powys 14
Wales Rhondda Cynon Taff 9
Wales Rhondda Valley 1
Wales South Glamorgan 43
Wales Vale of Glamorgan 15
Wales West Glamorgan 32

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 112 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 53
Aruba 1
Australia 1238
Austria 21
Belarus 2
Belgium 51
Bermuda 3
Bosnia and Herzegovina 5
Brazil 97
Brunei Darussalam 1
Bulgaria 6
Cambodia 1
Canada 738
Canary Islands 5
Chile 26
China 15
Colombia 19
Costa Rica 1
Croatia 12
Cuba 1
Curacao 1
Cyprus 8
Czech Republic 9
Denmark 57
Dominican Republic 2
Ecuador 4
Egypt 4
Eire 469
Estonia 3
Faroe Islands 1
Fiji 1
Finland 63
France 151
Georgia 1
Germany 211
Ghana 1
Gibraltar 7
Greece 15
Guatemala 5
Guernsey 11
Holland 1
Hong Kong 23
Hungary 8
Iceland 14
India 29
Indonesia 8
Iran 5
Israel 36
Italy 122
Japan 11
Jersey 8
Jordan 4
Kenya 2
Kuwait 2
Latvia 3
Lebanon 2
Lithuania 1
Luxembourg 3
Malaysia 16
Malta 12
Mexico 19
Moldova 1
Monaco 2
Montenegro 1
Morocco 5
Namibia 1
Netherlands 1
New Zealand 296
Nigeria 2
Norway 135
Oman 3
Pakistan 4
Panama 1
Peru 4
Philippines 9
Poland 63
Portugal 34
Puerto Rico 8
Qatar 6
Republic of Panama 1
Romania 17
Russia 71
Saudi Arabia 10
Senegal 1
Serbia 3
Singapore 15
Slovakia 6
Slovenia 13
South Africa 104
South Korea 8
Spain 124
Sri Lanka 4
Sultanate of Oman 2
Sweden 104
Switzerland 54
Syria 1
Taiwan 8
Thailand 6
The Netherlands 254
Trinidad & Tobago 3
Turkey 22
U.A.E. 1
U.S.A. 7097
Ukraine 9
United Arab Emirates 23
United Kingdom 9049
Uruguay 4
Venezuela 3
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders