Understanding Rare
Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

BECOME A MEMBER

Your Support Counts


A donation to Unique helps us provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

Donate

Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
View

Found 139 results. Page 1 of 1

Country County No. of Members
England -none- 26
England Avon 108
England Bath & NE Somerset 8
England Bedfordhshire 1
England Bedfordshire 123
England Berkshire 113
England Buckinghamshire 92
England Cambridgeshire 160
England Cheshire 197
England Cleveland 65
England Cornwall 96
England County Durham 76
England Cumbria 67
England Derbyshire 109
England Devon 156
England Dorset 98
England East Riding 1
England East Riding of Yorkshire 10
England East Sussex 180
England East Yorkshire 50
England Essex 298
England Gloucestershire 89
England Greater Manchester 179
England Hampshire 300
England Herefordshire 17
England Hertfordshire 168
England Humberside 20
England Isle of Man 7
England Isle of Wight 20
England Istanbul 1
England Kent 352
England Lancashire 262
England Leicestershire 101
England Lincolnshire 123
England London 413
England Merseyside 122
England Middlesex 126
England NE Lincolnshire 8
England Norfolk 121
England North Lincolnshire 7
England North Somerset 23
England North Yorkshire 93
England Northamptonshire 108
England Northumberland 36
England Nottinghamshire 169
England Oxfordshire 87
England Rutland 3
England Shropshire 51
England Somerset 106
England South Glamorgan 1
England South Gloucestershire 21
England South Yorkshire 195
England Staffordshire 125
England Strathclyde 1
England Suffolk 123
England Surrey 304
England Tyne & Wear 122
England Warwickshire 76
England West Midlands 233
England West Sussex 120
England West Yorkshire 235
England Wiltshire 109
England Wirral 3
England Worcestershire 45
Northern Ireland -none- 3
Northern Ireland Co. Antrim 86
Northern Ireland Co. Armagh 21
Northern Ireland Co. Derry 9
Northern Ireland Co. Down 54
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 16
Northern Ireland Co. Tyrone 16
Northern Ireland County Tyrone 1
Scotland -none- 8
Scotland Aberdeenshire 40
Scotland Angus 13
Scotland Argyll 5
Scotland Argyll & Bute 8
Scotland Ayrshire 25
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 2
Scotland Dumfries & Galloway 11
Scotland Dumfrieshire 5
Scotland Dunbartonshire 4
Scotland East Ayrshire 4
Scotland East Dunbartonshire 3
Scotland East Lothian 16
Scotland Edinburgh 2
Scotland Fife 40
Scotland Grampian 7
Scotland Highland 14
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 15
Scotland Lothian 22
Scotland Midlothian 18
Scotland Moray 2
Scotland North Ayrshire 4
Scotland North Lanarkshire 25
Scotland Perthshire 7
Scotland Renfrewshire 20
Scotland Ross-shire 10
Scotland Roxburghshire 6
Scotland Scottish Borders 8
Scotland Selkirkshire 5
Scotland Shetland 5
Scotland South Lanarkshire 9
Scotland Stirlingshire 27
Scotland Strathclyde 81
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 2
Scotland West Lothian 18
Scotland Wigtownshire 1
Wales -none- 3
Wales Anglesey 7
Wales Caerphilly 3
Wales Carmarthenshire 20
Wales Ceredigion 11
Wales Clwyd 11
Wales Conwy 9
Wales Denbighshire 14
Wales Dyfed 2
Wales Flintshire 8
Wales Gwent 36
Wales Gwynedd 17
Wales Mid Glamorgan 26
Wales Monmouthshire 10
Wales Pembrokeshire 19
Wales Powys 14
Wales Rhondda Cynon Taff 6
Wales South Glamorgan 38
Wales Vale of Glamorgan 12
Wales West Glamorgan 32

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
View

Found 108 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 46
Aruba 1
Australia 1116
Austria 17
Belarus 2
Belgium 44
Bermuda 3
Bosnia and Herzegovina 4
Brazil 74
Brunei Darussalam 1
Bulgaria 6
Canada 638
Canary Islands 5
Chile 22
China 11
Colombia 14
Costa Rica 1
Croatia 8
Cuba 1
Curacao 1
Cyprus 6
Czech Republic 8
Denmark 51
Dominican Republic 1
Ecuador 3
Egypt 3
Eire 427
Estonia 3
Faroe Islands 1
Fiji 1
Finland 56
France 137
Germany 185
Ghana 1
Gibraltar 6
Greece 15
Guatemala 4
Guernsey 11
Holland 1
Hong Kong 20
Hungary 7
Iceland 9
India 27
Indonesia 7
Iran 4
Israel 31
Italy 112
Japan 9
Jersey 6
Jordan 4
Kenya 2
Kuwait 1
Latvia 2
Lebanon 1
Lithuania 1
Luxembourg 3
Malaysia 10
Malta 10
Mexico 17
Monaco 2
Montenegro 1
Morocco 4
Namibia 1
New Zealand 262
Nigeria 2
Norway 130
Oman 2
Pakistan 4
Panama 1
Peru 3
Philippines 9
Poland 50
Portugal 29
Puerto Rico 6
Qatar 3
Republic of Panama 1
Romania 13
Russia 54
Saudi Arabia 9
Senegal 1
Serbia 2
Singapore 14
Slovakia 6
Slovenia 11
South Africa 90
South Korea 7
Spain 106
Sri Lanka 4
Sultanate of Oman 2
Sweden 100
Switzerland 52
Syria 1
Taiwan 8
Thailand 5
The Netherlands 233
Trinidad & Tobago 3
Turkey 18
U.A.E. 1
U.S.A. 6414
Ukraine 7
United Arab Emirates 20
United Kingdom 8202
Uruguay 3
Venezuela 4
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders