Understanding Rare
Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique helps us provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 135 results. Page 1 of 1

Country County No. of Members
England -none- 23
England Avon 103
England Bath & NE Somerset 6
England Bedfordshire 120
England Berkshire 108
England Buckinghamshire 87
England Cambridgeshire 161
England Cheshire 188
England Cleveland 65
England Cornwall 93
England County Durham 71
England Cumbria 63
England Derbyshire 108
England Devon 153
England Dorset 96
England East Riding 1
England East Riding of Yorkshire 8
England East Sussex 172
England East Yorkshire 48
England Essex 287
England Gloucestershire 85
England Greater Manchester 163
England Hampshire 287
England Herefordshire 16
England Hertfordshire 160
England Humberside 20
England Isle of Man 7
England Isle of Wight 21
England Kent 331
England Lancashire 252
England Leicestershire 92
England Lincolnshire 113
England London 405
England Merseyside 115
England Middlesex 127
England NE Lincolnshire 8
England Norfolk 117
England North Lincolnshire 4
England North Somerset 23
England North Yorkshire 86
England Northamptonshire 109
England Northumberland 34
England Nottinghamshire 162
England Oxfordshire 83
England Rutland 3
England Shropshire 49
England Somerset 99
England South Gloucestershire 18
England South Yorkshire 183
England Staffordshire 118
England Strathclyde 1
England Suffolk 118
England Surrey 296
England Tyne & Wear 121
England Warwickshire 74
England West Midlands 219
England West Sussex 113
England West Yorkshire 225
England Wiltshire 97
England Wirral 3
England Worcestershire 41
Northern Ireland -none- 1
Northern Ireland Co. Antrim 79
Northern Ireland Co. Armagh 19
Northern Ireland Co. Derry 9
Northern Ireland Co. Down 51
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 16
Northern Ireland Co. Tyrone 15
Scotland -none- 6
Scotland Aberdeenshire 39
Scotland Angus 13
Scotland Argyll 4
Scotland Argyll & Bute 8
Scotland Ayrshire 24
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 2
Scotland Dumfries & Galloway 11
Scotland Dumfrieshire 5
Scotland Dunbartonshire 4
Scotland East Ayrshire 4
Scotland East Dunbartonshire 3
Scotland East Lothian 16
Scotland Edinburgh 2
Scotland Fife 40
Scotland Grampian 7
Scotland Highland 13
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 13
Scotland Lothian 24
Scotland Midlothian 19
Scotland Moray 2
Scotland North Ayrshire 4
Scotland North Lanarkshire 22
Scotland Perthshire 6
Scotland Renfrewshire 21
Scotland Ross-shire 10
Scotland Roxburghshire 6
Scotland Scottish Borders 6
Scotland Selkirkshire 5
Scotland Shetland 5
Scotland South Lanarkshire 9
Scotland Stirlingshire 25
Scotland Strathclyde 82
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 2
Scotland West Lothian 16
Scotland Wigtownshire 1
Wales -none- 1
Wales Anglesey 7
Wales Caerphilly 3
Wales Carmarthenshire 19
Wales Ceredigion 9
Wales Clwyd 10
Wales Conwy 8
Wales Denbighshire 13
Wales Dyfed 2
Wales Flintshire 7
Wales Gwent 36
Wales Gwynedd 15
Wales Mid Glamorgan 26
Wales Monmouthshire 10
Wales Pembrokeshire 18
Wales Powys 13
Wales Rhondda Cynon Taff 6
Wales South Glamorgan 36
Wales Vale of Glamorgan 12
Wales West Glamorgan 28

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 105 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 40
Australia 1057
Austria 15
Belarus 2
Belgium 37
Bermuda 3
Bosnia and Herzegovina 2
Brazil 67
Brunei Darussalam 1
Bulgaria 5
Canada 605
Canary Islands 5
Chile 22
China 9
Colombia 12
Costa Rica 1
Croatia 8
Cuba 1
Curacao 1
Cyprus 6
Czech Republic 8
Denmark 48
Dominican Republic 1
Ecuador 3
Egypt 3
Eire 420
Estonia 3
Faroe Islands 1
Fiji 1
Finland 53
France 129
Germany 178
Ghana 1
Gibraltar 6
Greece 15
Guatemala 3
Guernsey 10
Holland 1
Hong Kong 19
Hungary 6
Iceland 7
India 27
Indonesia 5
Iran 3
Israel 29
Italy 103
Japan 9
Jersey 6
Jordan 4
Kenya 2
Kuwait 1
Latvia 2
Lithuania 1
Luxembourg 3
Malaysia 9
Malta 10
Mexico 17
Monaco 2
Montenegro 1
Morocco 4
Namibia 1
New Zealand 253
Nigeria 2
Norway 124
Oman 1
Pakistan 4
Panama 1
Peru 3
Philippines 9
Poland 44
Portugal 29
Puerto Rico 6
Qatar 3
Republic of Panama 1
Romania 13
Russia 47
Saudi Arabia 8
Senegal 1
Singapore 14
Slovakia 5
Slovenia 11
South Africa 82
South Korea 6
Spain 99
Sri Lanka 3
Sultanate of Oman 2
Sweden 98
Switzerland 47
Syria 1
Taiwan 7
Thailand 5
The Netherlands 221
Trinidad & Tobago 3
Turkey 17
U.A.E. 1
U.S.A. 6095
Ukraine 6
United Arab Emirates 18
United Kingdom 7821
Uruguay 3
Venezuela 4
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders