Understanding Rare
Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique helps us provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 140 results. Page 1 of 1

Country County No. of Members
England -none- 40
England Avon 115
England Bath & NE Somerset 10
England Bedfordhshire 1
England Bedfordshire 129
England Berkshire 117
England Buckinghamshire 101
England Cambridgeshire 175
England Cheshire 203
England Cleveland 67
England Cornwall 104
England County Durham 93
England Cumbria 71
England Derbyshire 122
England Devon 174
England Dorset 101
England East Riding of Yorkshire 16
England East Sussex 196
England East Yorkshire 54
England Essex 320
England Gloucestershire 91
England Greater Manchester 207
England Hampshire 319
England Herefordshire 21
England Hertfordshire 181
England Humberside 20
England Isle of Man 7
England Isle of Wight 22
England Istanbul 1
England Kent 382
England Lancashire 284
England Leicestershire 108
England Lincolnshire 139
England London 439
England Merseyside 128
England Middlesex 132
England NE Lincolnshire 11
England Norfolk 142
England North Lincolnshire 8
England North Somerset 23
England North Yorkshire 111
England Northamptonshire 112
England Northumberland 40
England Nottingham 1
England Nottinghamshire 175
England Oxfordshire 96
England Rutland 4
England Shropshire 57
England Somerset 114
England South Glamorgan 1
England South Gloucestershire 23
England South Yorkshire 215
England Staffordshire 137
England Strathclyde 1
England Suffolk 135
England Surrey 316
England Tyne & Wear 136
England Warwickshire 83
England West Midlands 262
England West Sussex 137
England West Yorkshire 268
England Wiltshire 121
England Wirral 4
England Worcestershire 49
Northern Ireland -none- 3
Northern Ireland Armagh 1
Northern Ireland Co. Antrim 95
Northern Ireland Co. Armagh 23
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 61
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 17
Northern Ireland Co. Tyrone 19
Scotland -none- 9
Scotland Aberdeenshire 44
Scotland Angus 13
Scotland Argyll 5
Scotland Argyll & Bute 8
Scotland Ayrshire 27
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 3
Scotland Dumfries & Galloway 15
Scotland Dumfrieshire 5
Scotland Dunbartonshire 6
Scotland East Ayrshire 5
Scotland East Dunbartonshire 3
Scotland East Lothian 18
Scotland Edinburgh 2
Scotland Fife 42
Scotland Grampian 6
Scotland Highland 13
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 17
Scotland Lothian 22
Scotland Midlothian 21
Scotland Moray 4
Scotland North Ayrshire 4
Scotland North Lanarkshire 28
Scotland Perthshire 7
Scotland Renfrewshire 24
Scotland Ross-shire 11
Scotland Roxburghshire 6
Scotland Scottish Borders 9
Scotland Selkirkshire 5
Scotland Shetland 4
Scotland South Lanarkshire 10
Scotland Stirlingshire 29
Scotland Strathclyde 83
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 3
Scotland West Lothian 22
Scotland Wigtownshire 1
Wales -none- 5
Wales Anglesey 8
Wales Caerphilly 3
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 14
Wales Conwy 10
Wales Denbighshire 16
Wales Dyfed 2
Wales Flintshire 8
Wales Gwent 40
Wales Gwynedd 18
Wales Mid Glamorgan 28
Wales Monmouthshire 11
Wales Pembrokeshire 20
Wales Powys 14
Wales Rhondda Cynon Taff 9
Wales Rhondda Valley 1
Wales South Glamorgan 43
Wales Vale of Glamorgan 15
Wales West Glamorgan 32

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 112 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 53
Aruba 1
Australia 1221
Austria 20
Belarus 2
Belgium 50
Bermuda 3
Bosnia and Herzegovina 5
Brazil 95
Brunei Darussalam 1
Bulgaria 6
Cambodia 1
Canada 733
Canary Islands 5
Chile 26
China 15
Colombia 18
Costa Rica 1
Croatia 12
Cuba 1
Curacao 1
Cyprus 7
Czech Republic 9
Denmark 57
Dominican Republic 2
Ecuador 4
Egypt 3
Eire 467
Estonia 3
Faroe Islands 1
Fiji 1
Finland 63
France 147
Georgia 1
Germany 209
Ghana 1
Gibraltar 7
Greece 15
Guatemala 5
Guernsey 11
Holland 1
Hong Kong 23
Hungary 8
Iceland 13
India 29
Indonesia 8
Iran 5
Israel 34
Italy 121
Japan 11
Jersey 8
Jordan 4
Kenya 2
Kuwait 2
Latvia 3
Lebanon 2
Lithuania 1
Luxembourg 3
Malaysia 15
Malta 12
Mexico 19
Moldova 1
Monaco 2
Montenegro 1
Morocco 4
Namibia 1
Netherlands 1
New Zealand 293
Nigeria 2
Norway 135
Oman 3
Pakistan 4
Panama 1
Peru 4
Philippines 9
Poland 62
Portugal 33
Puerto Rico 8
Qatar 6
Republic of Panama 1
Romania 16
Russia 68
Saudi Arabia 10
Senegal 1
Serbia 3
Singapore 15
Slovakia 6
Slovenia 13
South Africa 104
South Korea 8
Spain 123
Sri Lanka 4
Sultanate of Oman 2
Sweden 104
Switzerland 53
Syria 1
Taiwan 8
Thailand 6
The Netherlands 252
Trinidad & Tobago 3
Turkey 22
U.A.E. 1
U.S.A. 7034
Ukraine 9
United Arab Emirates 22
United Kingdom 8973
Uruguay 4
Venezuela 4
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders