Understanding Rare
Chromosome and Gene Disorders

UNIQUE FAMILIES


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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We depend on voluntary donations to help thousands of families coming to terms with a diagnosis of a rare chromosome or gene disorder. Your donation would allow us to support the rapidly increasing numbers of families needing our help.

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 143 results. Page 1 of 1

Country County No. of Members
England -none- 16
England Avon 100
England Bath & NE Somerset 6
England Bedfordshire 118
England Berkshire 102
England Buckinghamshire 81
England Cambridgeshire 152
England Cheshire 180
England Cleveland 61
England Cornwall 88
England County Durham 63
England Cumbria 54
England Derbyshire 96
England Devon 146
England Dorset 92
England East Riding 2
England East Riding of Yorkshire 2
England East Sussex 166
England East Yorkshire 46
England Essex 276
England Gloucestershire 82
England Greater Manchester 142
England Hampshire 269
England Herefordshire 13
England Hertfordshire 153
England Humberside 21
England Isle of Man 7
England Isle of Wight 21
England Kent 309
England Lancashire 241
England Leicestershire 82
England Lincolnshire 98
England London 380
England Merseyside 100
England Middlesex 122
England NE Lincolnshire 8
England Norfolk 114
England North Lincolnshire 4
England North Somerset 21
England North Yorkshire 80
England Northamptonshire 104
England Northumberland 33
England Nottinghamshire 154
England Oxfordshire 75
England Rutland 3
England Shropshire 46
England Somerset 90
England South Gloucestershire 17
England South Yorkshire 163
England Staffordshire 113
England Strathclyde 1
England Suffolk 108
England Surrey 279
England Tyne & Wear 109
England Warwickshire 70
England West Midlands 207
England West Sussex 107
England West Yorkshire 208
England Wiltshire 91
England Wirral 3
England Worcestershire 39
England Yorkshire 1
Northern Ireland -none- 1
Northern Ireland Co Down 1
Northern Ireland Co Londonderry 1
Northern Ireland Co. Antrim 73
Northern Ireland Co. Armagh 18
Northern Ireland Co. Atrim 1
Northern Ireland Co. Derry 9
Northern Ireland Co. Down 47
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 12
Northern Ireland Co. Tyrone 13
Northern Ireland Co.Tyrone 2
Scotland -none- 5
Scotland Aberdeenshire 37
Scotland Angus 10
Scotland Argyll 4
Scotland Argyll & Bute 7
Scotland Ayrshire 22
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 2
Scotland Dumfries & Galloway 10
Scotland Dumfrieshire 5
Scotland Dunbartonshire 3
Scotland East Ayrshire 4
Scotland East Dunbartonshire 3
Scotland East Lothian 15
Scotland Edinburgh 2
Scotland Fife 38
Scotland Grampian 7
Scotland Highland 13
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 14
Scotland Lothian 23
Scotland Midlothian 15
Scotland Moray 3
Scotland North Ayrshire 4
Scotland North Lanarkshire 20
Scotland Perthshire 6
Scotland Renfrewshire 21
Scotland Ross-shire 9
Scotland Roxburghshire 6
Scotland Scottish Borders 4
Scotland Selkirkshire 5
Scotland Shetland 3
Scotland South Lanarkshire 9
Scotland Stirling 1
Scotland Stirlingshire 23
Scotland Strathclyde 77
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 2
Scotland West Lothian 16
Scotland Wigtownshire 1
Wales -none- 2
Wales Anglesey 5
Wales Caerphilly 3
Wales Carmarthenshire 17
Wales Ceredigion 8
Wales Clwyd 9
Wales Conwy 7
Wales Denbighshire 12
Wales Dyfed 2
Wales Flintshire 4
Wales Glamorgan 1
Wales Gwent 33
Wales Gwynedd 15
Wales Mid Glamorgan 26
Wales Monmouthshire 9
Wales Monmouthshire, 1
Wales Pembrokeshire 17
Wales Powys 8
Wales Rhondda Cynon Taff 6
Wales South Glamorgan 31
Wales Vale of Glamorgan 11
Wales West Glamorgan 27

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 105 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 36
Australia 980
Austria 12
Belarus 2
Belgium 37
Bermuda 3
Bosnia and Herzegovina 2
Brazil 60
Brunei Darussalam 1
Bulgaria 5
Canada 565
Canary Islands 5
Chile 20
China 7
Colombia 10
Costa Rica 1
Croatia 7
Cuba 1
Curacao 1
Cyprus 6
Czech Republic 7
Denmark 48
Dominican Republic 1
Ecuador 3
Egypt 3
Eire 400
Estonia 3
Faroe Islands 1
Fiji 1
Finland 51
France 121
Germany 159
Ghana 1
Gibraltar 5
Greece 15
Guatemala 3
Guernsey 8
Holland 1
Hong Kong 19
Hungary 6
Iceland 6
India 24
Indonesia 2
Iran 3
Israel 26
Italy 93
Japan 8
Jersey 6
Jordan 3
Kenya 1
Kuwait 1
Latvia 2
Lithuania 1
Luxembourg 3
Malaysia 8
Malta 9
Mexico 13
Monaco 2
Montenegro 1
Morocco 3
Namibia 1
Netherlands 1
New Zealand 233
Nigeria 2
Norway 119
Pakistan 4
Panama 1
Peru 2
Philippines 8
Poland 40
Portugal 26
Puerto Rico 6
Qatar 3
Republic of Panama 1
Romania 9
Russia 40
Saudi Arabia 8
Senegal 1
Singapore 14
Slovakia 5
Slovenia 11
South Africa 77
South Korea 4
Spain 92
Sri Lanka 3
Sultanate of Oman 2
Sweden 91
Switzerland 46
Syria 1
Taiwan 6
Thailand 4
The Netherlands 211
Trinidad & Tobago 3
Turkey 14
U.S.A 2
U.S.A. 5617
Ukraine 4
United Arab Emirates 16
United Kingdom 7290
Uruguay 3
Venezuela 2
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders