Understanding Rare
Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique helps us provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 133 results. Page 1 of 1

Country County No. of Members
England -none- 38
England Avon 115
England Bath & NE Somerset 10
England Bedfordshire 129
England Berkshire 115
England Buckinghamshire 103
England Cambridgeshire 180
England Cheshire 205
England Cleveland 68
England Cornwall 108
England County Durham 97
England Cumbria 72
England Derbyshire 129
England Devon 178
England Dorset 103
England East Riding of Yorkshire 18
England East Sussex 202
England East Yorkshire 58
England Essex 331
England Gloucestershire 93
England Greater Manchester 215
England Hampshire 328
England Herefordshire 21
England Hertfordshire 186
England Humberside 20
England Isle of Man 7
England Isle of Wight 22
England Kent 400
England Lancashire 290
England Leicestershire 113
England Lincolnshire 145
England London 443
England Merseyside 136
England Middlesex 134
England NE Lincolnshire 11
England Norfolk 147
England North Lincolnshire 8
England North Somerset 25
England North Yorkshire 113
England Northamptonshire 117
England Northumberland 41
England Nottinghamshire 183
England Oxfordshire 97
England Rutland 4
England Shropshire 60
England Somerset 118
England South Gloucestershire 24
England South Yorkshire 222
England Staffordshire 138
England Suffolk 140
England Surrey 323
England Tyne & Wear 144
England Warwickshire 87
England West Midlands 266
England West Sussex 144
England West Yorkshire 281
England Wiltshire 123
England Wirral 4
England Worcestershire 51
Northern Ireland -none- 5
Northern Ireland Co. Antrim 97
Northern Ireland Co. Armagh 26
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 64
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 18
Northern Ireland Co. Tyrone 20
Scotland -none- 9
Scotland Aberdeenshire 47
Scotland Angus 14
Scotland Argyll 5
Scotland Argyll & Bute 9
Scotland Ayrshire 28
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 4
Scotland Dumfries & Galloway 16
Scotland Dumfrieshire 6
Scotland Dunbartonshire 7
Scotland East Ayrshire 4
Scotland East Dunbartonshire 3
Scotland East Lothian 18
Scotland Fife 43
Scotland Grampian 6
Scotland Highland 13
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 20
Scotland Lothian 23
Scotland Midlothian 22
Scotland Moray 4
Scotland North Ayrshire 4
Scotland North Lanarkshire 30
Scotland Perthshire 7
Scotland Renfrewshire 26
Scotland Ross-shire 11
Scotland Roxburghshire 7
Scotland Scottish Borders 9
Scotland Selkirkshire 5
Scotland Shetland 4
Scotland South Ayrshire 1
Scotland South Lanarkshire 10
Scotland Stirlingshire 30
Scotland Strathclyde 83
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 3
Scotland West Lothian 22
Scotland Wigtownshire 1
Wales -none- 5
Wales Anglesey 9
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 14
Wales Conwy 10
Wales Denbighshire 15
Wales Dyfed 2
Wales Flintshire 8
Wales Gwent 41
Wales Gwynedd 18
Wales Mid Glamorgan 29
Wales Monmouthshire 11
Wales Pembrokeshire 22
Wales Powys 15
Wales Rhondda Cynon Taff 10
Wales Rhondda Valley 1
Wales South Glamorgan 45
Wales Vale of Glamorgan 16
Wales West Glamorgan 33

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 109 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 57
Aruba 1
Australia 1271
Austria 23
Belarus 2
Belgium 53
Bermuda 3
Bosnia and Herzegovina 5
Brazil 101
Brunei Darussalam 1
Bulgaria 6
Cambodia 1
Canada 765
Canary Islands 5
Chile 26
China 19
Colombia 24
Costa Rica 1
Croatia 12
Cuba 1
Curacao 1
Cyprus 8
Czech Republic 9
Denmark 59
Dominican Republic 3
Ecuador 4
Egypt 5
Eire 478
Estonia 4
Faroe Islands 1
Fiji 1
Finland 65
France 153
Georgia 1
Germany 214
Ghana 1
Gibraltar 7
Greece 17
Guatemala 5
Guernsey 11
Hong Kong 23
Hungary 8
Iceland 14
India 31
Indonesia 9
Iran 5
Iraq 1
Israel 39
Italy 125
Japan 11
Jersey 8
Jordan 4
Kenya 2
Kuwait 2
Latvia 4
Lebanon 2
Lithuania 2
Luxembourg 4
Malaysia 16
Malta 12
Mexico 20
Moldova 1
Monaco 2
Montenegro 1
Morocco 5
Namibia 1
New Zealand 306
Nigeria 2
North Macedonia 1
Norway 137
Oman 5
Pakistan 4
Peru 5
Philippines 9
Poland 71
Portugal 36
Puerto Rico 8
Qatar 6
Republic of Panama 2
Romania 18
Russia 76
Saudi Arabia 10
Senegal 1
Serbia 3
Singapore 15
Slovakia 8
Slovenia 14
South Africa 105
South Korea 8
Spain 131
Sri Lanka 5
Sweden 108
Switzerland 57
Syria 1
Taiwan 8
Thailand 7
The Netherlands 259
Trinidad & Tobago 3
Turkey 23
U.S.A. 7321
Ukraine 9
United Arab Emirates 23
United Kingdom 9281
Uruguay 4
Venezuela 3
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders