Understanding Rare
Chromosome and Gene Disorders

Unique Families


With a large global network of Families and Professionals, Unique can help and support you in finding out more about your child's or your own rare chromosome disorder or autosomal dominant single gene disorder. Click on the button below to join our community and help us understand the lifetime effects of these rare disorders. Alternatively, if you have a query, email info@rarechromo.org

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A donation to Unique helps us provide information and support to families affected by rare chromosome and gene disorders. Please help us to be there for all those who need our help....

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Welcome to Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. You might despair at the lack of information about your own or your child's disorder or that the disorder hasn't even got a 'proper' name. Whatever your feelings and emotions, we know how much it can help to talk to people who understand what you are going through and who even know what you are talking about.

How can we help?

You might want to learn more about your child's rare chromosome disorder  or single gene disorder or find another child with the same disorder. We can try to help you with information and family links. Even if your child's disorder is unique, just talking to other parents can help to alleviate feelings of isolation and "why me?" Please click on the links above and below for more information and to learn how we can help. If you can't find a guide to your child's disorder we might still have members registered on our confidential database with a similar disorder. Just ask us on info@rarechromo.org

Practical Guides and Packs for Members

We collect information to help families affected by rare chromosome disorders and  autosomal dominant single gene disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Additional practical guides and updates to existing guides will be coming on stream all the time, as fundraising and donations allow, so please do pop back regularly to see what’s new.

UK Membership

We have members living across the UK.  Click on the link below to see how many members live in your county.

UK Membership
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Found 139 results. Page 1 of 1

Country County No. of Members
England -none- 38
England Avon 115
England Bath & NE Somerset 9
England Bedfordhshire 1
England Bedfordshire 129
England Berkshire 117
England Buckinghamshire 98
England Cambridgeshire 173
England Cheshire 202
England Cleveland 67
England Cornwall 102
England County Durham 90
England Cumbria 71
England Derbyshire 119
England Devon 173
England Dorset 100
England East Riding of Yorkshire 16
England East Sussex 192
England East Yorkshire 54
England Essex 318
England Gloucestershire 91
England Greater Manchester 197
England Hampshire 315
England Herefordshire 21
England Hertfordshire 182
England Humberside 20
England Isle of Man 7
England Isle of Wight 22
England Istanbul 1
England Kent 379
England Lancashire 280
England Leicestershire 107
England Lincolnshire 139
England London 436
England Merseyside 127
England Middlesex 132
England NE Lincolnshire 11
England NM 87123 1
England Norfolk 137
England North Lincolnshire 8
England North Somerset 23
England North Yorkshire 108
England Northamptonshire 112
England Northumberland 40
England Nottingham 1
England Nottinghamshire 174
England Oxfordshire 96
England Rutland 4
England Shropshire 56
England Somerset 111
England South Glamorgan 1
England South Gloucestershire 22
England South Yorkshire 214
England Staffordshire 135
England Strathclyde 1
England Suffolk 133
England Surrey 314
England Tyne & Wear 133
England Warwickshire 81
England West Midlands 261
England West Sussex 137
England West Yorkshire 258
England Wiltshire 119
England Wirral 3
England Worcestershire 49
Northern Ireland -none- 3
Northern Ireland Co. Antrim 95
Northern Ireland Co. Armagh 22
Northern Ireland Co. Derry 10
Northern Ireland Co. Down 60
Northern Ireland Co. Fermanagh 11
Northern Ireland Co. Londonderry 17
Northern Ireland Co. Tyrone 19
Scotland -none- 9
Scotland Aberdeenshire 43
Scotland Angus 13
Scotland Argyll 5
Scotland Argyll & Bute 8
Scotland Ayrshire 26
Scotland Berwickshire 2
Scotland Caithness 3
Scotland Central 10
Scotland Clackmannanshire 3
Scotland Dumfries & Galloway 15
Scotland Dumfrieshire 5
Scotland Dunbartonshire 6
Scotland East Ayrshire 5
Scotland East Dunbartonshire 3
Scotland East Lothian 18
Scotland Edinburgh 2
Scotland Fife 43
Scotland Grampian 6
Scotland Highland 13
Scotland Inverclyde 2
Scotland Isle of Bute 1
Scotland Isle of Lewis 1
Scotland Isle of Skye 1
Scotland Kirkcudbrightshire 1
Scotland Lanarkshire 17
Scotland Lothian 22
Scotland Midlothian 20
Scotland Moray 4
Scotland North Ayrshire 4
Scotland North Lanarkshire 27
Scotland Perthshire 7
Scotland Renfrewshire 24
Scotland Ross-shire 11
Scotland Roxburghshire 6
Scotland Scottish Borders 9
Scotland Selkirkshire 5
Scotland Shetland 5
Scotland South Lanarkshire 10
Scotland Stirlingshire 29
Scotland Strathclyde 81
Scotland Sutherland 1
Scotland Tayside 1
Scotland West Dunbartonshire 3
Scotland West Lothian 22
Scotland Wigtownshire 1
Wales -none- 5
Wales Anglesey 8
Wales Caerphilly 3
Wales Carmarthenshire 21
Wales Ceredigion 11
Wales Clwyd 14
Wales Conwy 10
Wales Denbighshire 16
Wales Dyfed 2
Wales Flintshire 8
Wales Gwent 40
Wales Gwynedd 18
Wales Mid Glamorgan 29
Wales Monmouthshire 11
Wales Pembrokeshire 20
Wales Powys 14
Wales Rhondda Cynon Taff 9
Wales South Glamorgan 41
Wales Vale of Glamorgan 14
Wales West Glamorgan 33

International Membership

We welcome families and individuals affected by rare chromosome and autosomal dominant single gene disorders to join our membership, no matter where in the world you live.  Click on the link below to see how many members we have living in your country.

International Membership
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Found 110 results. Page 1 of 1

Country No. of Members
Albania 2
Alderney 1
Argentina 53
Aruba 1
Australia 1208
Austria 20
Belarus 2
Belgium 48
Bermuda 3
Bosnia and Herzegovina 5
Brazil 93
Brunei Darussalam 1
Bulgaria 6
Canada 723
Canary Islands 5
Chile 26
China 14
Colombia 18
Costa Rica 1
Croatia 9
Cuba 1
Curacao 1
Cyprus 6
Czech Republic 9
Denmark 57
Dominican Republic 1
Ecuador 4
Egypt 3
Eire 460
Estonia 3
Faroe Islands 1
Fiji 1
Finland 63
France 146
Georgia 1
Germany 206
Ghana 1
Gibraltar 7
Greece 15
Guatemala 5
Guernsey 11
Holland 1
Hong Kong 22
Hungary 8
Iceland 13
India 28
Indonesia 8
Iran 4
Israel 34
Italy 118
Japan 11
Jersey 8
Jordan 4
Kenya 2
Kuwait 1
Latvia 3
Lebanon 2
Lithuania 1
Luxembourg 3
Malaysia 15
Malta 11
Mexico 19
Moldova 1
Monaco 2
Montenegro 1
Morocco 4
Namibia 1
New Zealand 289
Nigeria 2
Norway 134
Oman 2
Pakistan 4
Panama 1
Peru 4
Philippines 9
Poland 58
Portugal 32
Puerto Rico 8
Qatar 5
Republic of Panama 1
Romania 16
Russia 68
Saudi Arabia 10
Senegal 1
Serbia 3
Singapore 15
Slovakia 6
Slovenia 12
South Africa 102
South Korea 8
Spain 119
Sri Lanka 4
Sultanate of Oman 2
Sweden 103
Switzerland 53
Syria 1
Taiwan 8
Thailand 5
The Netherlands 249
Trinidad & Tobago 3
Turkey 21
U.A.E. 1
U.S.A. 6949
Ukraine 9
United Arab Emirates 22
United Kingdom 8871
Uruguay 4
Venezuela 4
Vietnam 2
Zimbabwe 2
Download the Little Yellow Book
Our guide to rare chromosome disorders