Understanding Rare
Chromosome and Gene Disorders

Keeping you informed

To read and download any of our practical guides for families, click View below. If you would like to see a new topic added to this range of guides, please let us know by emailing  marion@rarechromo.org with your ideas. To support our work in this area to help us produce more resources for families, please click here.

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(Page last updated 9th April 2018)

Practical Guides for Families
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A Clinical Genetics Appointment Web Version Print Version
Adoption Guide Web Version Print Version
After Diagnosis, What Next Web Version Print Version
Behaviour Guide Web Version Print Version
Carers Wellbeing Web Version Print Version
Communication Web Version Print Version
Education Web Version Print Version
Feeding Web Version Print Version
Further Education, Training And Work Web Version Print Version
Grants And Funding Web Version Print Version
Holidays Guide Web Version Print Version
Looking After Your Childs Teeth Web Version Print Version
Planning Your Next Child Web Version Print Version
Puberty Web Version Print Version
Sleep Web Version Print Version
Sports Leisure Days Out Web Version Print Version
Supporting Siblings Of Children With A Rare Chromosome Disorder Web Version Print Version
Teeth Common Concerns Web Version Print Version
Toilet Training And Continence Web Version Print Version
Transition Web Version Print Version
Travel Insurance Web Version Print Version
Young Carers Web Version Print Version