Understanding Rare
Chromosome and Gene Disorders
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2019 – The Year in Numbers

It’s been another very busy year for Unique – welcoming and helping more families than ever before, providing information and support about a wide range or rare chromosome and gene disorders.
In fact, it’s been quite a decade! At the end of 2009, Unique membership stood at 7,020 families. Today it stands at 21,200 families, representing over 23,000 individuals with rare chromosome and gene disorders.
It took us 25 years to reach 7,000 but in the last 10 years 14,000 families have joined us, proving that while your family member might be ‘unique’, they are definitely not alone! In fact, 2019 has been our busiest year yet as many more children and adults receive a diagnosis.
Here’s this year in numbers……