How To Join Us
The info@rarechromo.org helpline will not be available until the 20th October. In the meantime, please email Satnam on satnam@rarechromo.org with your enquiries.
Membership of Unique is free for families and individuals affected by rare chromosome disorders but donations are very gratefully received to help us continue our work. For membership please give us:
- your full name
- full postal address with post code or zip code and the country you live in
- email address
- telephone number with area code (and country code if you live outside the United Kingdom)
Please make sure that you give these details to us accurately so that we can get back to you. Sometimes different internet service providers are incompatible and your email messages to us will be bounced back to you. If this happens, please try again and if that does not solve the problem, please telephone, fax or write to us instead
Please also give us details of your own and/or your child's rare chromosome disorder, including the karyotype with any breakpoint numbers. If you do not know your own or your child's karyotype then you can ask your doctor or geneticist. If possible, please also let us have copies of the original lab reports explaining the karyotype. If you are not sure what a karyotype is then please read our Little Yellow Book for an explanation
Please send your details to:
Beverly Searle
Unique Chief Executive Officer
P.O.Box 2189,
Caterham,
Surrey,
CR3 5GN,
England
E-mail: info@rarechromo.org
or rarechromo@aol.com
Tel: 44 (0)1883 330766
Fax: 44 (0)1883 330766
|
