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Practical Guides for Families

We have been collecting information to help families affected by rare chromosome disorders with practical daily living and have produced a series of information guides on a variety of topics from communication to grants and funding. Unique does its best to keep abreast of changing information and to review its published guides as needed. New guides about other practical topics, and updates to existing guides, will be coming on stream all the time, so please do pop back regularly to see whatís new. If you would like to see a new topic added to this range of guides, please let us know by emailing craig@rarechromo.org with your ideas.

Just click on the relevant title in the table below to download the Unique guide to the topic in which you are interested.

Whether you are a family or professional or a member of the general public, please help us to continue this work by being generous with your donations or fundraising. If you own a company or your employer makes donations to charities, why not consider sponsoring one of our guides? Itís a great way to help us and good advertising! Just contact craig@rarechromo.org to discuss further.

Before downloading any of our guides, we ask you to please read and adhere to our Disclaimer and Copyright Notice.

Title Web Version Print Version Quick Read Other Versions
English  
After Diagnosis Web Version
Print Version
   
Communication guide Web Version
Print Version
   
Education Web Version
Print Version
   
Feeding Web Version
Print Version
   
Grants and funding guide Web Version
Print Version
   
Holidays short breaks travel guide Web Version
Print Version
   
Looking after your childs teeth Web Version
Print Version
   
Outdoor bikes leisure and sensory toys Web Version
Print Version
   
Sleep Web Version
Print Version
   
Supporting Siblings of Children with a Rare Chromosome Disorder Web Version
Print Version
   
Teeth Common Concerns Web Version
Print Version
   

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