Chromosome Disorder Leaflets
We have been collecting information about specific chromosome disorders in our comprehensive offline database for nearly 25 years and since 2003 have spent many thousands of hours producing family-friendly, medically-verified, disorder-specific information leaflets. These leaflets are dynamic documents and will be updated as new information becomes available. New leaflets about other chromosome disorders will be coming on stream all the time. To find out about the exacting process we adopted to produce these leaflets, please view our leaflet protocol description.
We have produced two levels of information leaflet about many of the rare chromosomal disorders affecting our members (see the table below for the specific titles), including:
- A brief introduction in trifold format (Quick Read Version), suitable for families with a new or recent diagnosis and for couples with an unborn baby.
- A more detailed and descriptive leaflet that includes many references to families' individual experiences of having a child with a particular disorder. The longer leaflets are suitable for families who wish to know in greater detail how other people have been affected by a particular disorder and understand the often broad range of outcomes that are possible for their own child. The longer leaflets are available as:
- A Web Version formatted for viewing online.
- A Print Version formatted to be printed so it can be stapled together as a booklet.
Just click on the relevant title in the table below to download the Unique Information Leaflets on the disorders in which you are interested.
Whether you are a family or professional or a member of the general public, please help us to continue this work by being generous with your donations, fundraising or sponsorship. We receive no government funding and can only continue our work with your support. If you are a family affected by a rare chromosome disorder, please do join us and contribute to the collective knowledge so that we can continue to make our leaflets even more comprehensive.
Before downloading any of our leaflets, we ask you to please read and adhere to our disclaimer and copyright notice.
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| Website last updated on 13 October 2008 |
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| This page last updated 26 September 2008 |
The Rare Chromosome Disorder Support Group |
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| Website editor Beverly Searle BSc(Hons) PhD CBiol MIBiol |
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